A baby in Alabama was born without a nose due to an extremely rare malformation that affects 1 in 197 million babies.
When Eli Thompson was born, doctors and the mother noticed something very different about the child; he had no nose.
Brandi McGlathery told the Mobile Press-Register that her baby started breathing immediately through his mouth and was taken to USA Children’s and Women’s Hospital in Mobile for further evaluation.
Only 5 days old, Eli underwent a tracheotomy to help with his breathing. Since then, McGlathery says “he’s been a much happier baby,” the Mobile Press-Register reports.
The malformation is known as congenital arhinia, and the mother says it affects only 1 in 197 million babies.
There have only been 43 documented cases of congenital arhinia since it was first reported in 1931, according to a 2014 article published by the U.S. National Library of Medicine.
While the condition can be life-threatening because it causes complications with breathing and eating, there have been cases where babies have made it well into adulthood, Buzzfeed News reports.
The mother has gone above and beyond to ensure the health of her baby. She has consulted with other parents who have had children born with the malformation and patients who’ve grown up with it.
McGlathery worked with a lactation consultant to figure the best way to breastfeed Eli after his tracheotomy. The procedure left Eli with the inability to make noise when he cries and the mother has to keep a constant eye on him.
McGlathery said she and the boy’s father, Troy Thompson, decided against plastic surgery. She told the Press-Register that they are going to let Eli decide when he gets older if he wants any procedures done.
“Until the day he wants to have a nose, we don’t want to touch him,” McGlathery told The Mobile Press-Register. “We have to take it day by day.”
The loving mother added that “he’s perfect the way he is.”
Friends of the family have set up a GoFundMe campaign to help cover baby Eli’s surgeries and other expensive medical costs. The campaign has already raised more than $7,600.
Source: BuzFeed News / Photo Credit: Facebook